Tag Archives: sarcoma

How many Chickfila’s are there in New York City?

One. That’s right. There is exactly one Chickfila in NYC. But we found it! Haha. It is on the NYU campus, in a food court. I dragged my mom down there after I had my blood work and radiation done … Continue reading

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5th Avenue Presbyterian

Today was a pretty day, but the wind was bitterly cold. My parents and I bundled up and went to hear the service at 5th Avenue Presbyterian. Scott Black Johnston is the Pastor there and was previously the Senior Pastor … Continue reading

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And on the 5th day…

Day 5 in the Creation Story: God created the creatures of the sea. Seeing as today is the day that I am most closely resembling a porpoise, I find that strangely fitting. My beard is gone and the eyebrows are … Continue reading

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Eating Tips & Fanny Packs

Fortunately, I am feeling a bit more sane this evening. After my roller coaster ride earlier this week, my feet have been planted firmly on the ground once again. We’ve worked out my drug schedules so I am no longer … Continue reading

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Tuesday… part deux

I woke up this afternoon to the rather pleasant (or unpleasant) news that it is now Wednesday and time to go get my preliminary radiation tests done. Assuming this must be some elaborate hoax, I check my phone to see … Continue reading

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Sleepy time superheros

Today has been rather uneventful, as I spent the vast majority of it in bed, sleeping. We went in to the hospital this morning to make sure all my levels were still ok, and so far, so good! Tomorrow I … Continue reading

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Nuke it

I am officially on round 2 of chemo! I guess they heard what a good time I was having and decided to nip that in the bud! Also, since I have my doctor back, he’s upped the dose of chemo … Continue reading

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Saturday

Boy was it a beautiful day in New York City!!! This is a picture I took this morning from the roof of our new apartment building. Man, what a day! We are currently moving into our new apartment. My parents … Continue reading

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Thanksgiving

Yesterday was Thanksgiving, and as crazy as it might sound, I have A LOT to be thankful for this year! Going through something like this really puts life in perspective and I am constantly blown away at how lucky I … Continue reading

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Broadway and Balloons

Last night we went to Memphis on Broadway. Simply incredible. The story was great and the music was even better. If you are ever up here and trying to decide what to see, don’t hesitate to see this show. Here … Continue reading

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Superman is dead but Macy’s lives forever

Haha, well maybe not dead, but not lasting as long as I’d hoped! I woke up this morning with the beginnings of my first mouth sore forming on the tip of my tongue. I’ve been fortunate to avoid them this … Continue reading

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Superman

We went in for blood work again today and got some good news! Not only have my WBCs rebounded, they are at what I like to call Superman status. Before I started any of this, my counts were at a … Continue reading

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Massages, Burgers and Football

Sunday Sunday Sunday! Or as I refer to it: Fantasy Football Day. Fantasy Football is a revolution these days. The sheer number of people that play is amazing. I am mildly obsessed to put it lightly. I’m also on a … Continue reading

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Hello Emilio!

Doctor Emilio Lacayo is my PCP, but is also so much more than that to both me and my family. He first became my Aunt Joan’s doctor several years ago and has subsequently taken over care of my grandmother, brother … Continue reading

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Bruising like a peach

Last night after my mom and I got back from Macy’s I was messing around and getting ready for bed when I looked down and saw a huge bruise on the top of my hand. I don’t bruise easily, so … Continue reading

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Hope Lodge

If I’d known New York could be this affordable I’d have gotten cancer years ago! Continue reading

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It’s science

Normal WBCs fall in the range of 4.3 to 10.8. As of noon today mine were at 1.9. Continue reading

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Connections

Few things in life form deeper human connections than times of struggle. Continue reading

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BEAUTIFUL day in the neighborhood

Today is my final day in the NYU Med Center, and what a beautiful day it is! It has been raining for the past few days, so waking up with the bright sunshine spreading it’s way across the East River … Continue reading

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Hilarities of Hospital Living

Having now been living in the NYU Medical Center for 8 days, there are some funny things that I’ve started noticing happening to me and my lifestyle. Continue reading

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