Well, there isn’t much new to report these days. I’m just hanging out at home, in between chemo treatments, and have one more consultation set up with a surgeon here in NYC tomorrow morning. We had one with the NYU surgeon on Tuesday. So far we’ve had a pretty mixed bag as far as recommendations, but I must say that at this point I think I’m leaning towards amputation. Every surgeon we have talked to says that the limb salvage is a difficult surgery with long recovery times and has a higher risk of recurrence. The two doctors in Boston said they think it would be worth a shot to do the limb salvage, but I’m just not convinced that it is the safest course of action.¬†With the tumor located so close to the critical structures in the leg, I think that route sounds risky and increases the likelihood of the cancer spreading through the blood stream.

The truth is, they really don’t know much about this type of cancer. Sarcoma’s are rare, and my specific type of sarcoma is rarer still. Amputating above the tumor just seems like it would logically minimize the chance of tumor cells getting into the blood and having a chance to set up shop somewhere else in my body.

Also, something that every doctor has said is that if I did the limb salvage I would never be able to run or jump again, but if we amputate that wouldn’t be an issue. It is weird to think that cutting off my leg will actually allow me to be more active than keeping it, but that is the reality of the situation.

It’s also a very weird thing to be faced with a decision where you have to sit here and decide between keeping your leg or cutting it off. Thinking about how you will go about your daily activities with one leg is just kind of surreal. It’s going to happen soon too. It seems like it is something that is far off and not quite real, but it’s not more than a couple of weeks away.

We’ll see what the doctor says tomorrow and see if he sways my thoughts. I’ll post again soon, once I’ve made the decision on which course I am going to take. Until then things are just kind of in a holding pattern!

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11 Responses to Decisions

  1. Jim and Heather Stancil says:

    We are so sorry that you have to make such an difficult decision. But we know that you are getting absolutely the best most objective and informed facts that are possible in the medical world. You are doing this exactly right and you will make the right choice. And if you do in fact choose amputation (oh my gosh, you are right, it seems so bizarre just to type it), you will excel in recovery and perseverance and attitude just as you have in this initial treatment. You are already an inspiration and you will, limb or no, continue to be an inspiring and awesome young man. You (and your sweet parents who I know would lovingly trade places with you in a heartbeat) will be very much in our thoughts these next few days as you are wrestling with your choices. And you and they are always in our prayers.

  2. Carol Hoover says:

    Rob, we prayed for you at choir rehearsal tonight. You have such a big decision to make and we are all holding you close in prayer.

  3. marques says:

    You’re a strong, smart man. Whatever decision you make, you’ve got a great team of doctors, friends, and family behind you. Things will work out in either scenario. Atlanta/Chicago’s thinking about you,

  4. Bob and Paula Parris says:

    Rob, we prayed for you last night at Parkway Baptist here in Atlanta. We’re good friends of your aunt Joan and your Grandmother and have been hearing about you since you were a youngster. Our special prayer for you today is that God would guide you and your doctors in this time of decision.

  5. Zona Trahan says:

    Rob, you rock!!! I am so happy you are able to make a decision that eases your mind and let’s you begin to plan your life going forward. We said a prayer for you at Bible Study on Tuesday and I asked the group to pray specifically to give you the knowledge to make the best decision for you and the courage to lay it in God’s hands after you make that decision. The ladies loved having you on our prayer list.

  6. janie redfearn morris says:

    Rob. Marcus and I sure are praying. It sounds like you are getting excellent advice, and that Dr. Rosen is awesome in his care and counsel. I have to say that from what you say, it sounds like the amputation might be the safest and most sensible choice. We are diligently praying. Roslyn said that it sounds like one more round of chemo for good measure. I HATE that you have to go through that again, particularly the two day chemo. Still it sounds like the best thing to do. You take care. We will be praying for the LORD’S peace as you journey on in this battle. Love you.

  7. Brucerugby79 says:

    I can tell by the post I think you know what to do.Hope I don’t tick anybody off by this-but dang it -I have seen what people do with artificial limb.I know you don’t even know me but you are worth more to Gods kingdom alive than alternative-this is hard because it is not my place-but you will be watersking within a year. in my book you needed clear cut evidence that it would go without any chance of recurance. Jim I apologize if I have overstepped my bounds with your son.
    looking forward to meeting you and we will continue to pray and follow blog
    yours in Christ
    Bruce Lauriault

  8. peggy redfern says:

    Save your life, not your limb. That’s my vote.

    With love and respect, Peggy

  9. Brucerugby79 says:

    You are my hero-Man has the LORD got plans for you

  10. ken reeves says:

    Rob this is Ken Reeves a great friend gave me your name and website this would be Zona she was there for me thru all my hard times and I think God for her friendship.

    • ken reeves says:

      I dont know how I posted that before I was ready but I’am not real good with puters. What I was going to say was, I lost my left leg below the knee in a motorcycle accident in 1985 I was 25 yrs old I am now 51 so I have been without my leg longer than I had it. I had always fooled with horses just pleasure riding but after my wreck I started team roping and roped for years and still do some time but I have lost some of the passion over the years its not because I cant. I worked at a chemical plant for 20 yrs after my wreck I was a mechanic and worked on my tools and continued to climb columns and do my usual job and was never on restricted duty, I have since retired and have really been blessed in life. My wife and I have raised 3 wonderful sons and I did the whole deal of little league coaching and everything else it takes to raise kids. I say all of this just to let you know that this wont be the end of life as you know it, they have come so far with prosthetics just since I have had one. You will be able to do anything you want to ,you just may have to find different ways to approach it. Last year I snow skied for the first time at the age of fifty I have done alot of scuba diving also… You sound like you have a great support group praying for you and prayer is always a good thing I will keep you in my thought and prayers and keep up with your progress. If you ever need to ask questions are talk just shoot me an email. It will take a strong mind to overcome but I feel sure you will not have a problem. May God Bless you and your family, stay strong and remember that God will never burden you with more than you can handle. Goodluck, Ken Reeves

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