Well, there isn’t much new to report these days. I’m just hanging out at home, in between chemo treatments, and have one more consultation set up with a surgeon here in NYC tomorrow morning. We had one with the NYU surgeon on Tuesday. So far we’ve had a pretty mixed bag as far as recommendations, but I must say that at this point I think I’m leaning towards amputation. Every surgeon we have talked to says that the limb salvage is a difficult surgery with long recovery times and has a higher risk of recurrence. The two doctors in Boston said they think it would be worth a shot to do the limb salvage, but I’m just not convinced that it is the safest course of action. With the tumor located so close to the critical structures in the leg, I think that route sounds risky and increases the likelihood of the cancer spreading through the blood stream.
The truth is, they really don’t know much about this type of cancer. Sarcoma’s are rare, and my specific type of sarcoma is rarer still. Amputating above the tumor just seems like it would logically minimize the chance of tumor cells getting into the blood and having a chance to set up shop somewhere else in my body.
Also, something that every doctor has said is that if I did the limb salvage I would never be able to run or jump again, but if we amputate that wouldn’t be an issue. It is weird to think that cutting off my leg will actually allow me to be more active than keeping it, but that is the reality of the situation.
It’s also a very weird thing to be faced with a decision where you have to sit here and decide between keeping your leg or cutting it off. Thinking about how you will go about your daily activities with one leg is just kind of surreal. It’s going to happen soon too. It seems like it is something that is far off and not quite real, but it’s not more than a couple of weeks away.
We’ll see what the doctor says tomorrow and see if he sways my thoughts. I’ll post again soon, once I’ve made the decision on which course I am going to take. Until then things are just kind of in a holding pattern!