Peculiarities and PET Scans

Main entrance to the NYU Cancer Center

Today started out as another quick trip down to the NYU Cancer Center, but ended up taking all day. We went down for radiation, which thankfully went just as quickly as yesterday. No wait in the waiting room, just straight back and into treatment. After we were done I told my mom I wanted to go talk to Dr. Rosen because my leg has been steadily hurting worse over the past few days, and I just wanted to let him know what was going on.

We went up to his office and sat down with him. He looked at my leg and listened as I described the pain that I have been having. He then told us that he was concerned because it looks like my leg has not really responded to the chemo we have been doing. Apparently, in his experience (which is extensive), 14 out of 14 tumors respond to this treatment. I guess mine just happens to be that 15th tumor they didn’t check out. I’m all for being different, but this is one of those cases that I think I’d prefer to just blend into the crowd!

The PET Scan machine at NYU

I’m not going to lie, hearing him say that he has never seen a tumor that has not responded to this treatment kind of threw me for a minute. He has specialized in dealing with this type of tumor since the 70’s. It’s not like he’s new to this or something. He went on to say that it could just be that there is extensive swelling, or possibly some bleeding in the muscle, but basically we don’t know what is going on. So we decided to go ahead and get another PET scan done rather than waiting until after the next round of chemo.

They said we might be able to get in tomorrow, and my mom asked if there was a way to do it today. They looked skeptical and said “Well, you can’t eat anything before you do this scan, have you eaten today?” Any other day of the week I would have, but I had actually skipped breakfast today. Also, last night I just had beef tenderloin for dinner. You are also supposed to eat a low carb diet before this scan. So they went and checked and sure enough there had been a cancellation this afternoon at 3:30! It is pretty amazing how getting in for these tests have worked out for us every time we need one. I’m gonna chalk that up to the incredible prayer network that is going on out there! We find out the results tomorrow, which will give us an idea of what is actually going on with the tumor.

Something that I woke up to this morning that I thought was pretty cool, was an email from a guy I work with named Jeff. He had taken a picture of the status board that is maintained by Tony Picone in our office. Tony is an incredibly nice guy and basically takes care of all of the creatives. One of his responsibilities is updating the status board that shows where everyone is if they are out of the office. Jeff’s picture showed me what Tony has put up as my daily status. Haha. Thanks Tony, I love it!!!

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4 Responses to Peculiarities and PET Scans

  1. Rebecca Bean says:

    I love the status board update. It made me smile because it is so true. :)

    Hope tomorrow’s test results go well. As always, you and your family are in our thoughts and prayers.

    Warmest Regards,
    Rebecca

  2. peggy redfern says:

    That status board is cool! I love it.

    Let us know the results when you hear something.

    Love you, Peggy

  3. Hi Rob

    I am praying for you. I know how stressful waiting for test results can be and I am so glad they were able to fit you in. Great status board!

    Say hi to your mom for me. Tell her I lost her “mom blog” address and would like to catch up with her. Tell your sister that Emily says hi and would like to speak with her.

  4. ted sapp says:

    Rob -keep on Beating Cancer! My prayers are with you and your family. Merry Christmas.

    Ted

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