Day 5 in the Creation Story: God created the creatures of the sea. Seeing as today is the day that I am most closely resembling a porpoise, I find that strangely fitting. My beard is gone and the eyebrows are next. They are already easily coming out in my hands, which means that they only have a few days remaining!
I was talking to a couple across from me in the NYU Cancer Center today who have been with Dr. Rosen for a while now. We were discussing Dr. Rosen’s techniques and his aggressive treatment of this disease, which we were both thankful for. Apparently the other doctors who treat sarcomas are only just now agreeing to give half of the ifosfamide (chemo) that he prescribes, a dose that he used to give 15 years ago! Thank God for Dr. Rosen. When we were originally hearing options for treating this, I was told that we would do radiation and possibly some chemo later on. Right now I am doing a double dose of chemo in conjunction with radiation. This is a high grade tumor and I want to hit it hard. Looks like the Lord lined us up with the right guy to do just that!
The couple I talked with also discussed the fact that they had to remove a small amount of his nerve when they removed his sarcoma. His tumor was in the bone, but it was close enough to the nerve that they had had to take a bit of it. He now has to wear a special leg brace/shoe that holds his foot up for a while, because until the nerve grows back he can not lift his left toe. Nerves tend to grow back at about one mm/day. It’s a bit of a process.
Listening to their story really clarifies how big of an issue it could be having my nerve bundle and arteries running right through the middle of my tumor. Dr. Rosen has been up front about the fact that we are not out of the woods on saving my leg, but hopefully that will not be the case. Although those new spring-loaded prostheses are pretty sweet. I’d probably drop a full second in the 40! But then again, it could be awkward only shopping for one shoe… So for now let’s keep praying that the tumor shrinks away from those problem areas.
Tonight we went for a walk down 5th Avenue. I wasn’t feeling spectacular, but I figure it’s nice to get out while I can and while the weather permits! Here are a few pictures from the excursion. Nothing great, but we had a good time! Hope everyone is staying warm!
Day 5 down. Eleven to go.