Comments for

Comment on 2013 Masters by Joan

Joan — Tue, 30 Apr 2013 21:41:23 +0000

God really gave you such talent!

Comment on 2013 Masters by Jolie Gavin

Jolie Gavin — Sun, 28 Apr 2013 13:12:24 +0000

These pictures are amazing!!! You have skillzzzz, Rob!! That first picture pretty much sums up breathtaking. And Tiger Woods flashing his pearly whites at you, no big deal or anything! Very awesome!

Comment on Home by Jolie Gavin

Jolie Gavin — Sun, 07 Apr 2013 21:10:42 +0000

I know this is an old post. I am still reading through your blog. Such an inspirational post. I am glad you are back and Atlanta, and even more glad that you were able to take home such wonderful memories of your adventures in NY despite why you were there. I hope you continue to post when you can!!!

Comment on Genium by Rob

Rob — Wed, 03 Apr 2013 13:26:44 +0000

Hey Jolie,
A lot of what you are describing sounds similar to the situation I went through, but you have some things that are definitely going your way, so I wouldn’t freak out too much!

It sounds like this mass is still pretty small and on the surface. Those are both good things! When they removed my tumor they said it was the size of a softball or grapefruit. It was also deep in my leg, pressing up against the bones and arteries. These are the reasons we decided to amputate. If it is on the surface, amputation usually isn’t the preferred course of action. Also, mine had been in my leg for 6 years without metastasizing. They continually told me it was just a calcified hematoma. It was hard as a rock and you could kind of move it around as well, but it was really deep, so not all that well compared to what you are describing.

My number one piece of advice I can give you is to just try not to freak out! You are doing everything you can do right now, so take comfort in that. You are actively taking care of this lump, and you don’t even know if it is cancer yet. If it is cancer, you are just going to continue doing everything that you can possibly do to get it out of your system. If it isn’t cancer, then you have been worrying yourself unnecessarily! Either way, worrying does nothing but get in the way of your healing and prevents your body from taking care of itself. You only have the ability to do everything that is in your power. Leave the rest up to God and stay positive knowing that you are taking the proper steps to getting whatever this is out of your system!

If you have any questions or would like to talk more, feel free to email me at rrgreg@gmail.com!

Take care!
Rob

Comment on Genium by Jolie Gavin

Jolie Gavin — Mon, 01 Apr 2013 23:36:01 +0000

I am so grateful I found your blog. I found a lump just above my knee 4 years ago. It was a hard small mass, about the size of a pea. It felt like a little stone that was fixed to the top of my skin, but I could move freely around. I wanted to be sure it was nothing so I went to have it looked at and was told I was fine and that it was a lipoma. Since Lipoma are generally soft, and the mass I had was rock hard, I got a second opinion. I was told again, it was a lipoma and not to worry. So I didn’t. But every year I made sure my doctor checked it out just to be safe and every year while it was growing slightly in size, I was told it was nothing to be concerned with. In January of this year I once again asked my doctor to check it out because I was starting to experience pain near and on the mass which was now the size of a grape, but still movable and hard. She once again said it was nothing but to get it removed by a plastic surgeon since it is now causing me pain. Well I had my consultation with the surgeon in February. I could see the concern in her face. She even said it has to come out to get a diagnoses and that it did not have the characteristics of a lipoma. I get the lump on on April 11th and I am so scared. It’s been there for over 4 years! I don’t have a hard time breathing so thats all I am going on with it not spreading to the lungs. Was your mass moveable? Is there any advice you can offer me? I am terrified.

Comment on Mediport Free! by Port Surgery tomorrow | Luke's Adventures

Port Surgery tomorrow | Luke's Adventures — Mon, 25 Mar 2013 12:56:44 +0000

[...] http://survivingsarcoma.com/?p=1188 [...]

Comment on About by Rob

Rob — Tue, 12 Mar 2013 18:38:11 +0000

Thanks Nell! That’s very nice of you. God has blessed me beyond all understanding. I hope everything is going well with you!

Rob

Comment on About by Nell Tilghman Estes

Nell Tilghman Estes — Sat, 09 Mar 2013 23:03:58 +0000

Hi, Rob,
I went to North Springs High School with your Dad. I saw your parents at our 40th reunion about 2 years ago. In corresponding with Jim recently I learned about your story and your blog. You are such an inspiration! May God continue to bless you in your journey and in your ministry of encouragement for countless others.
In His Grace,
Nell

Comment on Been too long by Rob

Rob — Tue, 26 Feb 2013 17:19:27 +0000

Haha, well we’ve had a few tournaments since Augusta. We aren’t that great, but I’m still having a great time being out there and learning the game. It’s also one of the best ways for me to get exercise and stay in shape, which is a great benefit!

And don’t worry, I’ll keep that between us! Haha

Comment on 2 Years as an Amputee by Robley Shirey

Robley Shirey — Tue, 26 Feb 2013 03:47:06 +0000

Rob,
Anniversaries really are “mile markers ” in our life. We are celebrating your cancer free status with you.
Blessings – Robley and John Shirey

Comment on Been too long by Zona Trahan

Zona Trahan — Mon, 25 Feb 2013 22:37:08 +0000

So you you going to tell us how your team did in Augusta??? This weekend I was working on a bunch of “work” stuff that had been ignored all week while at customers. Half way through I thought to myself “this isn’t something I want to be doing with the precious few moments I have left” so I stopped. Thank you for that great advice late last year in one of your postings and don’t tell your Dad!!!

Comment on Back in the saddle again by Rob

Rob — Wed, 20 Feb 2013 18:35:21 +0000

Hi Re’Ana, thanks for your message! Did the amputation successfully get rid of your cancer? I hope you are doing well. I’m sure you’ll be up and running around in no time!

Comment on Life as an amputee by Re'Ana h

Re'Ana h — Sat, 09 Feb 2013 00:34:03 +0000

im an a below the knee amputee

Comment on Back in the saddle again by Re'Ana h

Re'Ana h — Sat, 09 Feb 2013 00:31:13 +0000

hi rob my name is Re’Ana im 11years old and i have osteosarcoma. the cancer started spreading making mr lose my leg.im a bka. i would love to meet you .

Comment on Clean Up, Aisle 9 by After the Fall « It's Not a Sprint

After the Fall « It's Not a Sprint — Sun, 25 Nov 2012 14:34:47 +0000

[...] a serious injury after a fall following surgery, I suggest reading a blog post by Rob Gregory (http://survivingsarcoma.com/?p=936). Rob was diagnosed with a synovial sarcoma on October 27th, 2010 and decided to blog about it. [...]

Comment on Life as an amputee by Ashley Staker

Ashley Staker — Tue, 23 Oct 2012 05:55:45 +0000

I don’t think it’s weird. It really is something that I hardly ever notice. It’s you and you wear it so well :) Love you!!!

Comment on The reason I started this blog by Neal Seigfried

Neal Seigfried — Sat, 06 Oct 2012 19:58:13 +0000

Great Rob. The amputee community can use another volunteer.

Comment on The reason I started this blog by Paula Parris

Paula Parris — Sat, 08 Sep 2012 18:36:37 +0000

Rob, your faith and love for others is an inspiration to me. I’ll be praying for you as your continue your mission of helping.

Comment on The reason I started this blog by Peggy Guthrie

Peggy Guthrie — Sat, 08 Sep 2012 15:37:28 +0000

Awesome, Rob. Such an inspiration to see how things can work together for good and how caring for others can alleviate much agony in this world!

Comment on Wrightsville by LBerg

LBerg — Sun, 02 Sep 2012 04:35:12 +0000

So fun! That baby dolphin looks about 6 months old! Too cute!!