I received a note this morning from a woman who’s husband is currently dealing with Ewings Sarcoma. She said she had read my blog but hadn’t reached out earlier because she had feared the worst since it hadn’t been updated in so long. That has led me to feel compelled to write a new post, even though I’ve just let the blog sit idle for a few years.
I originally started this blog to keep family members up to date on my progress when I was going through my cancer treatments. It was much more manageable to just post updates in one place rather than trying to email with everyone separately, especially as the treatments advanced and I started becoming more and more physically exhausted. I have kept it up online because it still gets a fair amount of traffic from people looking for information about sarcomas. I haven’t updated it in so long because I just felt like the reason I was keeping the blog had kind of wrapped up. But for anyone who might stumble across this in the future, I am still alive and doing well!
I actually did have a recurrence of the cancer when we found that it had metastasized to my lungs in February of 2014. But that’s why we do the followup scans. Because I had stayed on top of my scans we were able to catch the little cancer spot early and remove it. Since then everything has been fine and I am still healthy and cancer free over a year later. Dr. Rosen told me that you just never know how these things will go as you move forward. Sometimes a spot like that will pop up once and then you’ll never have another and other times it will come back again. He said as long as only one spot pops up at a time, we’ll just go in and cut them out. The only reason I would need to do more chemo would be if I had several spots pop up at the same time. If that ever happens then we’ll go back and start the chemo treatments and everything else all over again.
But that’s enough about cancer! On to the fun stuff. I am still living in Chicago and have officially launched my photography career. Photography has always been a big part of who I am and I decided to stop putting it on the back burner and to seriously pursue it for the first time. I have been fortunate enough to have done a number of very fun projects and am specializing in sports, portraits and conceptual work.
To give you an idea of the type of work I am doing, I recently finished a project for the Rehabilitation Institute of Chicago and my wheelchair basketball team, the RIC Hornets. It was a lot of fun and I am really proud of how the images came out. They are using these posters to raise awareness for the program as well as attract new recruits.
I hope you like the work!
So anyway, that’s my random update after all this time. If you are reading this and are dealing with a sarcoma or amputation or whatever, please don’t hesitate to reach out if you need to talk to someone. I am always more than willing to help out when I can. I hope this finds everyone very happy and healthy. Until next time!